Summary
The Muhammad Ali Parkinson Center (MAPC) is a National Parkinson Foundation Center of Excellence, and a wonderful resource for people with Parkinson's and their families. The center's staff is committed to providing excellence in diagnosis, treatment, research, and education for people with Parkinson's disease (PD) and other movement disorders.
Recent Highlights
The most pressing project at the Muhammad Ali Parkinson Center is its Parkinson's Registry. The center's main goals for its registry are to accelerate the process of informing patients about research projects and clinical trials for which they may be eligible; to track the functional abilities and cost of illness associated with Parkinson's over time; to assess current treatment approaches and develop best-practice guidelines; and finally, to drive the development of innovative research projects. Any individual diagnosed with Parkinson's is eligible to enroll and participation in the Registry is voluntary, confidential, and completely free of charge. In the future, eligible participants will be notified about opportunities to participate in clinical trials, although they are under no obligation to enter. Currently, the Registry has almost 2,000 members internationally and is ever increasing. The center's ultimate goal is to reach 20,000 members.
How to get involved
The best way to get involved with the Muhammad Ali Parkinson Center is by signing up for their Parkinson's Registry. The Parkinson's Registry at the Muhammad Ali Parkinson Center was initially formed in 2003 with the ultimate goal of fighting Parkinson's disease through a participant-driven longitudinal study, so participants are asked to complete an updated questionnaire every six months.
The center also encourages patients to participate by attending its support groups, educational classes, research studies, assistance programs, conferences, recreational programs, and other services.How to donate
The Registry questionnaires can be completed online at www.parkinsonsregistry.com or participants can call 1.877.287.7122 to request a paper copy.